MiHUBx
Background
The Medical Informatics Hub in Saxony - MiHUBx started in September 2021 as one of six regional hubs of digital medical infrastructure in Germany (Digital Progress Hubs Health). The mission of the progress hubs is to extend the pioneering work of the Medical Informatics Initiative on digitization in medicine from university hospitals into all areas of the healthcare system, thus also integrating general practitioners, office-based specialists, regional hospitals or rehabilitation and care facilities.
Objective
The overall goal of the MiHUBx project is to develop and implement a basic infrastructure across different health care sectors, in order to increase the efficiency of cooperation between different actors in the healthcare system. The focus is on three concrete use cases:
- Diabetic eye disease
- Pandemic management
- Personalized cancer medicine
Through this, in Saxony, a digital space will be created, that can
- enable patients to benefit from modern and targeted therapies,
- enhance patient engagement,
- provide researchers with rapid access to the data they need for their studies on complex diseases and
- offer physicians well-founded decision-making aids for complex therapeutic questions.
In this way, MiHUBx will make an essential contribution to advancing digitization in medicine and accordingly help pave the future and competitiveness of the Saxony.
Our role in the project
Connection of the MiHUBx infrastructure to the telematics infrastructure
In the course of the development of the MiHUBx basic infrastructure (common infrastructure for all members of MiHUBx, which enables the cooperation of all actors), we continuously review the architectural decisions made with regard to their compliance with the German telematics infrastructure. For this purpose, the telematics and MiHUBx infrastructure is evaluated, based on different scenarios, with regard to the organizational, conceptual and technological suitability for connecting physicians in private practices to the hub. The assessment results will be translated into a connectivity statement and a set of recommendations to align MiHUBx activities with the capabilities of the telematics infrastructure. This will include assessing the suitability of MiHUBx to foster an ecosystem that can also be connected to third-party solutions, in order to scale it up across the region.
Networking platform and patient integration in personalized cancer care.
An essential component of personalized cancer medicine is not only the support of medical professionals through digital networking and data sharing, but also the empowerment of patients. Thus, personalized cancer medicine is characterized by an intensified exchange between all parties involved: specialists in private practices, specialists at the National Center for Tumor Diseases Dresden (NCT/UCC) and the patients themselves.
In order to improve this collaboration in personalized oncology, we are developing and implementing a networking platform that will provide treating physicians (referring physicians) with a comprehensive overview of their patients. For example, information on upcoming appointments, tasks, treatment steps or results of molecular analyses and treatment recommendations from the MASTER program (for patients with rare advanced cancer and patients diagnosed with incurable malignancies at an unusually early age) will be made available and communication and information exchange with specialists at the NCT/UCC will be facilitated. In addition, the patients should be enabled to actively participate and the interaction and information between patients and treating physicians should be simplified. Furthermore, it is our task to create the possibility for patients to receive additional information about the results of their analysis, to provide information themselves about quality of life or side effects and to be informed about upcoming appointments, all as a part of the networking platform.
Figure: Use Case 3 - Personalized Cancer Care
Project participants
Dresden University of Technology
- National Center for Tumor Diseases (NCT/UCC) - Medical Faculty Carl Gustav Carus
- Medical Clinic III - Medical Faculty Carl Gustav Carus
- ZEGV - Center for Evidence-Based Health Care - Medical Faculty Carl Gustav Carus
- Research Group Digital Health at the Faculty of Economics
Chemnitz University of Technology
- Junior Professorship Media Computing - Faculty of Computer Science
Chemnitz Hospital gGmbH
- Clinic for Ophthalmology, Department of Medical Informatics
Mittweida University of Applied Sciences
- Department of Media Computing - Faculty of Applied Computer and Life Sciences
